Saturday, October 22, 2016

comments from the conference

Hi everyone!  It has been a long time since my last blog because I have been super busy.  The PMP pals conference in Monterey, CA was awesome.  I met some really great and amazing people and I enjoyed the presenter topics.  I wanted to pass to you some helpful hints ideas that other survivors mentioned to me at the conference.

Mimi from Colorado says that she made herself a robe with a hood that she used as a cover up to keep her warm while walking in the hospital.   She liked this because she did not have to worry about it tangling with her IV lines and also helped with the embarrassing open back of the hospital gowns.

Elaine M. shared that she uses pant extenders so she can still wear here favorite pants and account for the extra room needed for her tummy.  She likes the ones from Comfy clothiers- the six button extenders for pants.  

I also learned more about what nutritional questions some of the other PMP survivors had.  Namely, fistula issues and G tube issues.  We are complicated!  I would recommend that any of you out there that have complicated issues such as these to find a local nutritional team to help work with you individually.  I would recommend a gastroenterologist (look for ones that specialize in nutritional support if available) and a registered Dietitian that specializes in nutritional support (RD, CNSC).  

I am gearing up for another MOAS in Dec so will not be blogging as much as I was.  I plan on addressing dietary fat and PMP next.  
I have also started, through the PMP pals' network online site a email link to answer individual questions.  It's called 'eat like a king' because my last name is king.  In this site I can answer some general nutritional questions and hopefully point you in the right direction.  However, my advice should never take the place of your local nutritional medical team or doctor's advice.  
My goal, as always, is to offer whatever help I can along the way.
I think that's it for now.  I hope you are all doing well and thank you for reading my blog.

Until next time- this is LK with cancer talk